Web1 Dec 2011 · Type. Journal article. Journal. BMJ (Clinical research ed.) Publication Date. 01/12/2011. Volume. 343 Web6 Jan 2024 · Broad consent - the act of gaining one consent for multiple potential future research projects - sits at the core of much current genomic research practice. Since the 25th May 2024, the General Data Protection Regulation (GDPR) has applied as valid law concerning genomic research in the EU and now o …
Revised Common Rule - UNC Research
Web28 Jun 2024 · Safeguarding the future of genomic research in South Africa: Broad consent and the Protection of Personal Information Act No. 4 of 2013 Genomic research has been identified in South Africa (SA) as important in developing a strong bio-economy that has the potential to improve human health, drive job creation and offer potential solutions to the … WebAlthough there are ongoing debates surrounding the ethical use of broad consent in Africa, the objective of this article is not to engage with the ethics of broad consent itself, but rather to focus on the legal status of broad consent for genomic data sharing under POPIA.", keywords = "Protection of Personal Information Act, data sharing, data ... flourish hair wand
Proposed Guidance Regarding Broad Consent for the Storage And …
Web3 Aug 2011 · Broad consent can be informed consent and is justified by appeal to the principle of respect for autonomy. Indeed, I will suggest that the distinction between the various kinds of consent is not a distinction between kinds of consent but between the kinds of choice a person makes. Web15 Oct 2024 · Additionally, when consent is structured as a single consent, biobanks can provide a much deeper consent process by investing more resources in the practical process of consent at the time of enrolment, which facilitates greater investment in face-to-face time for participants. Web23 Aug 2024 · The broad consent model used by UK Biobank is one of a few consent models that emerged to allow for large-scale and long-term storage and use of biospecimens. New scientific potentials necessitate ... greehey scholars program